BTN Patient Stories

Patient Stories

The BTN experience: testimonials of caring, sharing and support

While this website serves to explain what BTN does, the inspiring patient stories shared by brain tumor patients offer first-hand accounts of how we've helped others in your situation.  A testimonial can inspire as well as inform.

After the initial shock and uncertainty of a brain cancer diagnosis begins to wear off, you may find yourself seeking information, comfort and the best care available. BTN would like to help you identify your next steps in finding the right treatment options for you and assist you on that journey to treatment beyond standard of care.

BTN understands how challenging it can be when you or someone you care about faces the diagnosis of a brain tumor; that's why we strive to foster an environment for sharing support among people with similar stories.

Each person’s experience with a brain tumor diagnosis is uniquely personal. But BTN has seen firsthand how a community of people with common challenges can lift one another up.

Patients, brain cancer care providers, friends and family members who have been helped along this journey by BTN have been gracious enough to share some of their inspiring and moving experiences.

If you are a patient or caregiver who has been helped by BTN and would like to share your story (or stories), we'd like to hear from you.  Please email us at info@braintumornetwork.org.

Patient Stories

  • Hi, my name is Carmen Echevarria. My husband Freddie Echevarria was diagnosed with GBM stage 4. We attend the Northeast Florida Brain Tumor Support Group and by this, were referred to Brain Tumor Network.

  • My Journey began in 2008 when I was diagnosed with a Meningioma brain tumor.  Even still, it was a shock to me and to my family.  The tumor was small in size, the doctor’s recommended a wait, watch and see approach for the time being.  A Meningioma is typically a slow-growing and non-malignant type of brain tumor.

  • I just wanted to take a moment to tell you how very grateful my family is for the work of BTN.

    My son’s prefrontal cortex tumor was misdiagnosed in 2006 as connective tissue. We were told it was nothing to worry about. I didn’t worry about it to the point where I almost forgot about it.

  • We were referred to Brain Tumor Network by Andy at H. Lee Moffitt Cancer Center. Andy said BTN could help out a lot and he was right.