- Diagnosed with: Glioblastoma
- Location: North Dakota
- Navigator: Laura D. Hynes
“BTN was able to provide me with a real person to help navigate the inclusion and exclusion criteria of the clinical trials maze. In addition, their multidisciplinary team provides options about what could be explored next.”
Told by sister of patient
Our Neuro-Oncologist at the University of Minnesota gave us the contact information for the Brain Tumor Network. I emailed them right away as it looked like my brother’s Glioblastoma tumor might be recurring. Once we requested their services, BTN requested the necessary medical records to begin navigating for clinical trials.
Within days, our Patient Navigator, Laura Hynes, provided us with various Phase II and Phase III trials. Unfortunately, my brother was not eligible for the poliovirus trial at Duke University or the virus trials at MD Anderson in Texas. However, we made travel plans to MD Anderson for a second opinion. BTN coordinated all of this for us. As a result, MD Anderson will be a future resource for my brother if any clinical trials become available, but the University of Minnesota is doing exactly what standard of care entails.
I have only good things to say about BTN. Initially we were given the website of the American Brain Tumor Association for information about this tumor type as well as the National Brain Tumor Society for accessing additional information, both were helpful. However it was BTN that was able to provide me with a real person to help navigate the inclusion and exclusion criteria of the clinical trials maze. In addition, their multidisciplinary team provides options about what could be explored next and they have contacts at various brain tumor centers to get records sent in a timely fashion. I would highly recommend them to anyone dealing with this terrible life-altering cancer!