- Diagnosed with: Anaplastic Astrocytoma
- Location: Iowa
- Navigator: Laura D. Hynes
Laura was there to help me with clinical trials and what my options were. She helped me setup a second opinion, reviewed clinical trials, and is still very involved in my care as I continue to navigate through this. She handled everything, which was a big help- one less thing that I had to worry about!!!”
Told by patient
My tumor was first discovered in June 2011 when I fell and hit my head. I had a CT scan and then an MRI. Next, I was sent to see a neurosurgeon in Iowa City. I was not having any symptoms and it was not enhancing on the contrast images, so he decided that the mass probably wasn't malignant. I was advised that they would keep watching the tumor. In February 2013, my neurosurgeon decided it was time to take it out. The tumor was biopsied, and I was told that it was an Anaplastic Astrocytoma. Although the neurosurgeon stated that he was certain they removed all of the tumor, I went through radiation as a precaution.
So from May 2013 to October 2017, I was in the clear. I had MRI scans every 3-4 months to check the area and nothing happened until October 2017. The tumor had returned and this time it was inoperable. I started chemotherapy with a drug called Temozolomide and after three rounds, the MRI showed tumor progression. I was switched over to Gleostine, and this is when I was put in contact with BTN. I was very confused about all of the treatments available to me, but Laura was there to help me explore what my clinical trial options were. She helped setup a second opinion, reviewed clinical trials, and is still very involved in my care as I continue to navigate through this. She handled everything, which was a big help- one less thing that I had to worry about!!!