Privacy and Disclaimer

Disclaimer

The contents of this website, including regarding services, clinical trials, and treatment options, is provided for informational purposes only, so that patients can consider and make their own decisions. Such content is not a substitute for continued professional medical advice, diagnosis or treatment. BTN does not recommend or endorse any specific tests, physicians, medical institutions, products, procedures, opinions, or other information that may be mentioned on this website. Always check with your physician or other qualified health care provider if you have any questions or concerns about your diagnosis, medical condition, or before you start a new program of treatment or clinical trial. Reliance on any information contained on this website is solely at your own risk. BTN and the Sontag Foundation are not responsible or liable, directly or indirectly, for the use (or misuse) of any such information.

Brain Tumor Network’s Privacy Policy

The Brain Tumor Network (BTN) values its relationship with patients, families and supporters and respects your privacy and the information you share with us.

BTN will not sell, trade or share the personal information you provide to us. Regardless of whether you contact us by email, through our website, or by phone, your name will not be shared with others outside BTN and its authorized agents. This commitment to privacy includes, but is not limited to, mailing addresses, telephone or fax numbers, and email addresses. Exceptions to this policy include your approval or request to share your information, legal processes or when we believe that disclosure is necessary to protect you and to protect our rights as required by law.

How your contact information is used

We will use your contact information to provide the information you have requested and to send you updates about Brain Tumor Network and its activities. If you wish to stop receiving information from BTN, please email us at info@braintumornetwork.org. We will honor your request promptly.

Use of Standard Web server traffic pattern information

General traffic, site usage, browser information, and length of stay information is collected and stored in log files.

BTN does collect an Internal Protocol (IP) address from all visitors of our site. An IP address is a number that is automatically assigned to your computer when you use the Internet. We use IP addresses to help diagnose problems with our server, administer our site, analyze trends, track users’ movement, gather broad demographic information for aggregate use in order for us to improve the site and deliver customized, personalized content.

Our website may also use cookies to enhance your site experience. Cookies are pieces of information that some websites transfer to the computer that is browsing the website and are useful for gathering information such as browser type and operating system, tracking the number of visitors to the site, and understanding how visitors use the site. Use of cookies makes web-surfing easier, and many consider the use of cookies to be an industry standard. Your browser is probably set to accept cookies. However, if you would prefer not to receive cookies, you can alter the configuration of your browser to refuse cookies. If you choose to have your browser refuse cookies, it is possible that some areas of our site will not function properly when you view them.

Links within our website

Our privacy policies apply only to your use of BTN’s website. Several sections of our site provide links to other places on the Internet. We believe that the information services at these sites are of interest to brain tumor patients and others with an interest in neuro-oncology. We do not assume responsibility for the practices or content of any website which links to or from our site. If you have concerns about their privacy policies or security, please reach out to those providers directly.

Use of health information BTN receives:

Health information is provided to BTN based on medical record release forms signed by the patient. That health information is then used by BTN for purposes of our operations and administration including, but not limited to, sending the patient’s records to its advisors, consulting with the outside laboratory which reviewed that patient’s tissue/specimens, coordinating with its advisors regarding their review of medical records and lab results, and identifying potential treatment options and clinical trials the patient may wish to consider. BTN and/or its affiliates also may use the health information in an aggregate database. The aggregate database does not contain patient-identifying information; this means the information has been de-identified so that no individual person is identified. The aggregate database may be used for research and to review and improve the availability of treatment resources for patients with brain tumors. For example, information about tumor samples, diagnoses and treatments may be combined and shared with other doctors, scientists, and researchers to learn more about brain tumors and other medical conditions, to advance knowledge about these conditions, and to discuss possible advances in treatment.

How Brain Tumor Network stores the health information it receives:

Health information received by BTN is stored at BTN headquarters in Florida. Paper forms are stored in cabinets/offices/areas which are secure and not open to public access. Electronic health information is stored on BTN computers/servers, and the computer workstations require log-ins and passwords. Health information is accessed by BTN personnel on a need-to-know basis in order to do their jobs for BTN. BTN advisors are not employees of BTN but are health care providers who are obligated under federal and state laws to maintain the privacy and security of patient information they receive.

Brain Tumor Network does not sell patient-identifying health information:

BTN is a non-profit organization whose mission is to provide informational options to patients for them to discuss with their current physicians and treatment teams. BTN strives to maintain the privacy of health information provided to us. BTN does not sell patient-identifying health information, and we do not disclose patient-identifying information to any third parties for marketing or fundraising purposes.

A note about email

By its very nature, “E-mail” is not secure. Know that email can be intercepted and that a copy of your message may be stored on the computer you are using. For these reasons, please do not send any personal information in an email that you would be uncomfortable sharing with others.

If you have any questions, concerns or comments about our privacy policy, you may contact us at info@braintumornetwork.org. Please note, BTN reserves the right to make revisions to this policy as technology and other factors change. Messages regarding these updates to the privacy policy will be posted on the website.